Developing a Card Game for Assessment and Intervention in the Person and the Family in Palliative Care: “ Pallium Game ”

Carla Sílvia Fernandes, M. Belém Vale, Bruno Magalhães, João P. Castro, Marta D. Azevedo and Marisa Lourenço ()
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Carla Sílvia Fernandes: Nursing School of Porto, Center for Health Technology and Services Research (CINTESIS), 4200-450 Porto, Portugal
M. Belém Vale: Nursing in Hospital da Luz-Póvoa de Varzim, 4490-592 Póvoa de Varzim, Portugal
Bruno Magalhães: Department of Surgical Oncology, Portuguese Oncology Institute of Porto (IPO), 4200-072 Porto, Portugal
João P. Castro: Wecare Saúde—Continuous Integrated and Palliative Care Unit, 4490-492 Póvoa de Varzim, Portugal
Marta D. Azevedo: Wecare Saúde—Continuous Integrated and Palliative Care Unit, 4490-492 Póvoa de Varzim, Portugal
Marisa Lourenço: Nursing School of Porto, Center for Health Technology and Services Research (CINTESIS), 4200-450 Porto, Portugal

IJERPH, 2023, vol. 20, issue 2, 1-13

Abstract: Communication between the multidisciplinary team, the person, and the family in palliative and end-of-life situations implies, in most situations, a high negative emotional burden. Therefore, innovative strategies are needed to reduce it. The goal of this study is to describe the various stages of development and validation of a collaborative card game for people in palliative care and their families. Phase one is an exploratory study, Phase two is a Delphi study, and Phase three is a multiple case study. Participants for phases 2 and 3 were recruited using a convenience sampling method. The results demonstrate in an organized and structured way the different phases required to build a collaborative card game. The use of the game was found to be useful and effective. Four categories emerged from the content analysis of the open-ended responses: usability, evaluation tool, communication and therapeutic relationship, and meaning when using the game. A collaborative game in palliative care helps to create a space for individuals and families to express feelings and experiences, meeting the myriad of physical, psychosocial, and spiritual needs. The “Pallium game” is a useful and impactful approach to discussing sensitive topics in palliative care.

Keywords: palliative care; games; recreational; terminal care; family; family involvement; patient–caregiver communication (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2023
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