Creation and Validation of a Portuguese Version of the UCLA Scleroderma Clinical Trial Consortium Gastrointestinal Tract Instrument

Pedro Ferreira, Inês Genrinho (), Tânia Santiago, Adriana Carones, Carolina Mazeda, Anabela Barcelos, Tiago Beirão, Flávio Costa, Inês Santos, Maura Couto, Maria Rato, Georgina Terroso and Paulo Monteiro
Additional contact information
Inês Genrinho: Rheumatology Department, Tondela Viseu Hospital Centre, 3504-509 Viseu, Portugal
Tânia Santiago: Rheumatology Department, Coimbra and University Health Center, 3004-512 Coimbra, Portugal
Adriana Carones: Rheumatology Department, Coimbra and University Health Center, 3004-512 Coimbra, Portugal
Carolina Mazeda: Baixo Vouga Hospital Centre, Rheumatology Department, Egas Moniz Health Alliance, 3810-164 Aveiro, Portugal
Anabela Barcelos: Baixo Vouga Hospital Centre, Rheumatology Department, Egas Moniz Health Alliance, 3810-164 Aveiro, Portugal
Tiago Beirão: Rheumatology Department, Vila Nova de Gaia/Espinho Hospital Centre, 4434-502 Vila Nova de Gaia, Portugal
Flávio Costa: Rheumatology Department, Vila Nova de Gaia/Espinho Hospital Centre, 4434-502 Vila Nova de Gaia, Portugal
Inês Santos: Rheumatology Department, Tondela Viseu Hospital Centre Hospital Centre, 3460-525 Tondela, Portugal
Maura Couto: Rheumatology Department, Tondela Viseu Hospital Centre Hospital Centre, 3460-525 Tondela, Portugal
Maria Rato: Rheumatology Department, São João University Hospital Centre Hospital Centre, 4200-319 Porto, Portugal
Georgina Terroso: Rheumatology Department, São João University Hospital Centre Hospital Centre, 4200-319 Porto, Portugal
Paulo Monteiro: Rheumatology Department, Tondela Viseu Hospital Centre Hospital Centre, 3460-525 Tondela, Portugal

IJERPH, 2023, vol. 20, issue 2, 1-12

Abstract: (1) Background: The UCLA GIT 2.0 questionnaire has been recognized as a feasible and reliable instrument to assess gastrointestinal (GI) symptoms in systemic sclerosis (SSc) patients and their impact on quality of life. The aim of this study was to create and validate UCLA GIT 2.0 for Portuguese patients with SSc. (2) Methods: A multi-center study was conducted enrolling SSc patients. UCLA GIT 2.0 was validated in Portuguese using reliability (internal consistency, item –total correlation, and reproducibility) and validity (content, construct, and criterion) tests. Criterion tests included EQ-5D and SF-36v2. Social–demographic and clinical data were collected. (3) Results: 102 SSc patients were included, 82.4% of them female, and with a mean sample age of 57.0 ± 12.5 years old. The limited form of SSc was present in 62% of the patients and 56.9% had fewer than five years of disease duration. Almost 60% presented with SSc-GI involvement with a negative impact on quality of life. The means for SF-36v2 were 39.3 ± 10.3 in the physical component summary and 47.5 ± 12.1 in the mental component summary. Total GI score, reported as mild in 57.8% of the patients, was highly reliable (ICC = 0.912) and the Cronbach’s alpha was 0.954. There was a high correlation between the total GI score and EQ-5D-5L and SF-36v2 scores. (4) Conclusion: The Portuguese version of UCLA GIT 2.0 showed good psychometric properties and can be used in research and clinical practice.

Keywords: systemic sclerosis; gastrointestinal tract; UCLA GIT 2.0; quality of life (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2023
References: View complete reference list from CitEc
Citations: View citations in EconPapers (1)

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