Opportunities and Obstacles to the Development of Health Data Warehouses in Hospitals in France: The Recent Experience of Comprehensive Cancer Centers

François Bocquet (), Judith Raimbourg, Frédéric Bigot, Victor Simmet, Mario Campone and Jean-Sébastien Frenel
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François Bocquet: Data Factory & Analytics Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France
Judith Raimbourg: Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France
Frédéric Bigot: Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France
Victor Simmet: Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France
Mario Campone: Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France
Jean-Sébastien Frenel: Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France

IJERPH, 2023, vol. 20, issue 2, 1-13

Abstract: Big Data and Artificial Intelligence can profoundly transform medical practices, particularly in oncology. Comprehensive Cancer Centers have a major role to play in this revolution. With the purpose of advancing our knowledge and accelerating cancer research, it is urgent to make this pool of data usable through the development of robust and effective data warehouses. Through the recent experience of Comprehensive Cancer Centers in France, this article shows that, while the use of hospital data warehouses can be a source of progress by taking into account multisource, multidomain and multiscale data for the benefit of knowledge and patients, it nevertheless raises technical, organizational and legal issues that still need to be addressed. The objectives of this article are threefold: 1. to provide insight on public health stakes of development in Comprehensive Cancer Centers to manage cancer patients comprehensively; 2. to set out a challenge of structuring the data from within them; 3. to outline the legal issues of implementation to carry out real-world evidence studies. To meet objective 1, this article firstly proposed a discussion on the relevance of an integrated approach to manage cancer and the formidable tool that data warehouses represent to achieve this. To address objective 2, we carried out a literature review to screen the articles published in PubMed and Google Scholar through the end of 2022 on the use of data warehouses in French Comprehensive Cancer Centers. Seven publications dealing specifically with the issue of data structuring were selected. To achieve objective 3, we presented and commented on the main aspects of French and European legislation and regulations in the field of health data, hospital data warehouses and real-world evidence.

Keywords: Artificial Intelligence; Big Data Health; cancer; Comprehensive Cancer Center; French Data Protection Authority; General Data Protection Regulation; Health Data Hub; health data warehouse; hospital; oncology; National Health Data System; real-world data; real-world evidence studies (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2023
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