Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer

Yolanda Álvarez-Pérez (), Andrea Duarte-Díaz, Ana Toledo-Chávarri, Analía Abt-Sacks, Vanesa Ramos-García, Alezandra Torres-Castaño, Amado Rivero-Santana and Lilisbeth Perestelo-Pérez
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Yolanda Álvarez-Pérez: Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
Andrea Duarte-Díaz: Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
Ana Toledo-Chávarri: Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
Analía Abt-Sacks: Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
Vanesa Ramos-García: Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
Alezandra Torres-Castaño: Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
Amado Rivero-Santana: Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
Lilisbeth Perestelo-Pérez: Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain

IJERPH, 2023, vol. 20, issue 5, 1-14

Abstract: The diagnosis of breast cancer (BC) can make the affected person vulnerable to suffering the possible consequences of the use of low-quality health information. Massive open online courses (MOOCs) may be a useful and efficient resource to improve digital health literacy and person-centred care in this population. The aim of this study is to co-create a MOOC for women with BC, using a modified design approach based on patients’ experience. Co-creation was divided into three sequential phases: exploratory, development and evaluation. Seventeen women in any stage of BC and two healthcare professionals participated. In the exploratory phase, a patient journey map was carried out and empowerment needs related to emotional management strategies and self-care guidelines were identified, as well as information needs related to understanding medical terminology. In the development phase, participants designed the structure and contents of the MOOC through a Moodle platform. A MOOC with five units was developed. In the evaluation phase, participants strongly agreed that their participation was useful for the MOOC’s development and participating in the co-creation process made the content more relevant to them (experience in the co-creation); most of the participants positively evaluated the content or interface of the MOOC (acceptability pilot). Educational interventions designed by women with BC is a viable strategy to generate higher-quality, useful resources for this population.

Keywords: breast cancer; digital health literacy; person-centred care; health education; MOOC (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2023
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