COVID-19 Public Health Measures and Patient and Public Involvement in Health and Social Care Research: An Umbrella Review

Negin Fouladi (), Nedelina Tchangalova, Damilola Ajayi, Elizabeth Millwee, Corinne Lovett, Alana Del Sordi, Samantha Liggett, Malki De Silva, Laura Bonilla, Angel Nkwonta, Leah Ramnarine, Allyssa Munoz, Kate Frazer and Thilo Kroll
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Negin Fouladi: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Nedelina Tchangalova: STEM Library, University of Maryland, College Park, MD 20742, USA
Damilola Ajayi: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Elizabeth Millwee: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Corinne Lovett: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Alana Del Sordi: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Samantha Liggett: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Malki De Silva: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Laura Bonilla: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Angel Nkwonta: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Leah Ramnarine: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Allyssa Munoz: Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA
Kate Frazer: School of Nursing, Midwifery and Health Systems, University College Dublin, D04 V1W8 Dublin, Ireland
Thilo Kroll: School of Nursing, Midwifery and Health Systems, University College Dublin, D04 V1W8 Dublin, Ireland

IJERPH, 2023, vol. 20, issue 6, 1-19

Abstract: An umbrella review of previously published systematic reviews was conducted to determine the nature and extent of the patient and public involvement (PPI) in COVID-19 health and social care research and identify how PPI has been used to develop public health measures (PHM). In recent years, there has been a growing emphasis on PPI in research as it offers alternative perspectives and insight into the needs of healthcare users to improve the quality and relevance of research. In January 2022, nine databases were searched from 2020–2022, and records were filtered to identify peer-reviewed articles published in English. From a total of 1437 unique records, 54 full-text articles were initially evaluated, and six articles met the inclusion criteria. The included studies suggest that PHM should be attuned to communities within a sociocultural context. Based on the evidence included, it is evident that PPI in COVID-19-related research is varied. The existing evidence includes written feedback, conversations with stakeholders, and working groups/task forces. An inconsistent evidence base exists in the application and use of PPI in PHM. Successful mitigation efforts must be community specific while making PPI an integral component of shared decision-making.

Keywords: SARS-CoV-2; COVID-19; communicable diseases; pandemic; disease transmission; public health measures; patient and public involvement and engagement (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2023
References: View references in EconPapers View complete reference list from CitEc
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