Quality of Life, Physical and Mental Health, and Economic Evaluation of Family Caregivers of Chronic Dependent Children: INFAPRINT Cohort Study Protocol

Álvaro León-Campos, Silvia García-Mayor (), Celia Martí-García, Juan Carlos Morilla-Herrera, José Miguel Morales-Asencio, Inmaculada Lupiáñez-Pérez, Bibiana Pérez-Ardanaz and Magdalena Cuevas Fernandez-Gallego
Additional contact information
Álvaro León-Campos: Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
Silvia García-Mayor: Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
Celia Martí-García: Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
Juan Carlos Morilla-Herrera: Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
José Miguel Morales-Asencio: Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
Inmaculada Lupiáñez-Pérez: Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
Bibiana Pérez-Ardanaz: Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
Magdalena Cuevas Fernandez-Gallego: Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain

IJERPH, 2023, vol. 20, issue 6, 1-10

Abstract: Background: Caregivers for children with complex chronic illnesses may experience emotional and physical strain, especially as concerns attention overload and the perceptions of their own psychosocial situation. These concerns, together with the additional financial cost and the socioeconomic inequalities that arise from caregiving responsibilities, create major challenges to the health status of this population group. Methods: A prospective analytical longitudinal study will be conducted, based on an exposed cohort of adult caregivers (parents or guardians) for children with complex chronic processes, to evaluate the impact of caregiving responsibilities on the health status of this population group. Conclusions and implications: The practical implications of this study are of great significance for clinical practice. The results of this study have the potential to inform the decision-making process in the healthcare sector and guide future research initiatives. The findings of this study will provide crucial insights into the health-related quality of life of caregivers of children with complex chronic illnesses, which will be valuable in addressing the challenges faced by this population group. This information can be used to improve the availability and accessibility of appropriate health services and to facilitate the development of more equitable health outcomes for caregivers of children with complex chronic illnesses. By highlighting the extent to which this population is affected both physically and mentally, the study can contribute to the development of clinical practices that prioritize the health and well-being of caregivers in the care of children with complex chronic illnesses.

Keywords: nursing; caregivers; informal caregivers; paediatrics; quality of life; mental health; physical health; long-term care (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2023
References: View references in EconPapers View complete reference list from CitEc
Citations:

Downloads: (external link)
https://www.mdpi.com/1660-4601/20/6/5081/pdf (application/pdf)
https://www.mdpi.com/1660-4601/20/6/5081/ (text/html)

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:gam:jijerp:v:20:y:2023:i:6:p:5081-:d:1096383

Access Statistics for this article

IJERPH is currently edited by Ms. Jenna Liu

More articles in IJERPH from MDPI
Bibliographic data for series maintained by MDPI Indexing Manager ().