Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda

Dumisa Nyarambi, Fenose Osedeme, Hadii M. Mamudu (), Mary A. Littleton, Amy M. Poole, Cynthia Blair, Carl Voigt, Rob Gregory, David Drozek, David W. Stewart, Florence M. Weierbach, Timir K. Paul, Emily K. Flores and Holly Wei
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Dumisa Nyarambi: Department of Community and Behavioral Health, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA
Fenose Osedeme: Department of Community and Behavioral Health, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA
Hadii M. Mamudu: Department of Health Services Management and Policy, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA
Mary A. Littleton: Department of Community and Behavioral Health, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA
Amy M. Poole: Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
Cynthia Blair: Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
Carl Voigt: Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
Rob Gregory: Karing Hearts Cardiology, Johnson City, TN 37604, USA
David Drozek: Heritage College of Osteopathic Medicine, Ohio University, Athens, OH 45701, USA
David W. Stewart: Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
Florence M. Weierbach: Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
Timir K. Paul: Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
Emily K. Flores: Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
Holly Wei: College of Nursing, East Tennessee State University, Johnson City, TN 37614, USA

IJERPH, 2023, vol. 20, issue 9, 1-10

Abstract: The disproportionate burden of cardiovascular diseases (CVD) and associated risk factors continues to exist in the Central Appalachian Region (CAR) of the United States. Previous studies to gather data about patient-centered care for CVD in the region were conducted through focus group discussions. There have not been any studies that used a collaborative framework where patients, providers, and community stakeholders were engaged as panelists. The objective of this study was to identify patient-centered research priorities for CVD in the CAR. We used a modified Delphi approach to administer questionnaires to forty-two stakeholder experts in six states representing the CAR between the fall of 2018 and the summer of 2019. Their responses were analyzed for rankings and derived priorities by research gaps. Six of the fifteen research priorities identified were patient-centered. These patient-centered priorities included shorter wait times for appointments; educating patients at their level; empowering patients to take responsibility for their health; access to quality providers; heart disease specialists for rural areas; and lifestyle changes. The participants’ commitments to identify patient-centered research priorities indicate the potential to engage in community-based collaboration to address the burden of CVD in the CAR.

Keywords: patient-centered care; cardiovascular disease; Central Appalachian Region (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2023
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