Reaching out to Patients with Long COVID to Better Understand Their Life Experiences and How to Support Their Recovery: A Patient-Oriented Knowledge Sharing Session

Alexa Pommer, Gayle Halas, Rukmali Mendis, Cindy Campbell, Brenda Semenko, Brandy Stadnyk, Leyda Thalman, Susan Mair, Yue Sun, Neil Johnston and Diana C. Sanchez-Ramirez ()
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Alexa Pommer: Department of Respiratory Therapy, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB R3E 0T6, Canada
Gayle Halas: Department of Respiratory Therapy, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB R3E 0T6, Canada
Rukmali Mendis: Winnipeg Regional Health Authority, Winnipeg, MB R3E 0M1, Canada
Cindy Campbell: Winnipeg Regional Health Authority, Winnipeg, MB R3E 0M1, Canada
Brenda Semenko: Winnipeg Regional Health Authority, Winnipeg, MB R3E 0M1, Canada
Brandy Stadnyk: Winnipeg Regional Health Authority, Winnipeg, MB R3E 0M1, Canada
Leyda Thalman: Misericordia Health Centre, Winnipeg, MB R3C 1A2, Canada
Susan Mair: Misericordia Health Centre, Winnipeg, MB R3C 1A2, Canada
Yue Sun: Department of Respiratory Therapy, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB R3E 0T6, Canada
Neil Johnston: The Manitoba Lung Association, Winnipeg, MB R3A 1M5, Canada
Diana C. Sanchez-Ramirez: Department of Respiratory Therapy, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB R3E 0T6, Canada

IJERPH, 2024, vol. 21, issue 2, 1-9

Abstract: This article reports on participants’ experiences with long COVID-19 (LC) (symptoms, impact, healthcare use, and perceived needs) and satisfaction with a patient-oriented knowledge-sharing session organized by a multidisciplinary team of healthcare professionals, researchers, and a patient partner. Twenty-six participants completed a pre-session survey. On average, they were 21 months post-COVID-19 infection (SD 10.9); 81% of them were female, and 84% were 40+ years old. The main symptoms reported included fatigue (96%), cognitive problems (92%), and general pain or discomfort (40%). More than half of the participants reported that LC has had a significant impact on their health-related quality of life. Eighty-one percent of the participants reported seeking medical help for their LC symptoms and found the services provided by physical therapists, primary care providers, and acupuncturists to be helpful in managing their condition. Participants would like to have access to healthcare providers and clinics specializing in LC. They liked the session and found the information presented useful. This information helps to better understand the experiences of people living with LC and how to support their recovery.

Keywords: long COVID; community; patient experience; healthcare (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2024
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