A Needs Assessment Approach for Adolescent and Young Adult Sexual and Gender Diverse Cancer Survivors

Lauren V. Ghazal (), Hailey Johnston, Elisabeth Dodd, Yasmine Ramachandra, Nicholas Giallourakis, Kayla Fulginiti and Charles Kamen
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Lauren V. Ghazal: School of Nursing, University of Rochester, Rochester, NY 14642, USA
Hailey Johnston: Escape, Lansing, MI 48915, USA
Elisabeth Dodd: Escape, Lansing, MI 48915, USA
Yasmine Ramachandra: Escape, Lansing, MI 48915, USA
Nicholas Giallourakis: Elephants and Tea, Avon Lake, OH 44012, USA
Kayla Fulginiti: Elephants and Tea, Avon Lake, OH 44012, USA
Charles Kamen: Wilmot Cancer Institute, Rochester, NY 14642, USA

IJERPH, 2024, vol. 21, issue 4, 1-14

Abstract: Sexual and gender diverse (SGD) adolescent and young adult (AYA) cancer survivors are an increasing and vulnerable group with unique needs that often remain unmet in the healthcare system. This paper describes the conceptualization and development of a community-based organization dedicated to serving SGD AYAs, in addition to reporting on the results of a community-led needs assessment. A total of 56 SGD AYA community members completed the online survey. Most participants were between the ages of 26 to 33, identified as white, cisgender, bisexual women, and had hematologic malignancies. Identified unmet needs of SGD AYAs included the following: sexual health and family planning; gender affirmation; financial stability; and emotional support. Areas within the community organization were identified as gaps, areas of expansion, and assets. Results highlight the role of community and academic partnerships in improving cancer care delivery for SGD AYA cancer survivors.

Keywords: sexual and gender diverse; sexual and gender minority; LGBTQ+; support; mental health; community organization; community engagement; needs assessment (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2024
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