Qualitative Protocol of Chinese Parents and Siblings Experiences of Managing Challenging Behaviours of Adult Persons with Intellectual Disability in Hong Kong and Northern China

Lisa Pau-Le Low (), Alice Nga-Lai Kwong, Yue Wang, Maggie Yat-Cheung Wong, Mimi Mei-Ha Tiu and Karen Wing-See Wan
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Lisa Pau-Le Low: School of Health Sciences, Saint Francis University, Tseung Kwan O, Hong Kong 8732, China
Alice Nga-Lai Kwong: School of Health Sciences, Saint Francis University, Tseung Kwan O, Hong Kong 8732, China
Yue Wang: School of Nursing, Tianjin Medical University, Tianjin 301700, China
Maggie Yat-Cheung Wong: School of Health Sciences, Saint Francis University, Tseung Kwan O, Hong Kong 8732, China
Mimi Mei-Ha Tiu: School of Nursing, St. Teresa’s Hospital, Kowloon, Hong Kong 327, China
Karen Wing-See Wan: School of Health Sciences, Saint Francis University, Tseung Kwan O, Hong Kong 8732, China

IJERPH, 2024, vol. 21, issue 6, 1-9

Abstract: Background: While the literature has highlighted the immense challenges in caring for family members, it is still unclear what the needs of family carers of persons with intellectual disability and challenging behaviours are and what has worked for them. This study aims to examine 60 parents’ and siblings’ experiences in managing the challenging behaviours of their adult family member with intellectual disability whilst living at home. Methods: A qualitative grounded theory approach using semi-structured interviews will be adopted. Purposive sampling will be used to recruit family carers who live with adult persons with intellectual disability and use one community service in Hong Kong. Three special schools for persons with intellectual disability from northern China will be approached. Results: This study will aim to provide an in-depth understanding of the experiences of family carers and compare the different circumstances they face when managing the challenging behaviours of their adult relatives with intellectual disability in their family home. Conclusions: Although this study targets adults with intellectual disability, the findings will provide a point of reference for adolescents and younger persons who exhibit demanding and challenging behaviours and live with their families. Recommendations can guide the development of appropriate strategies to strengthen services for family carers.

Keywords: caregiving; challenging behaviours; Chinese; intellectual disability; parents; qualitative research; siblings (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2024
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