What Guides Organizations’ Current Dementia-Related Practices Across Four Canadian Provinces?

Maria Baranowski (), Nancy Jokinen, Leslie Udell, Sandy Stemp, Tracey Berman and Shahin Shooshtari
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Maria Baranowski: Department of Community Health Sciences, Rady Faculty of Health Sciences, Max Rady College of Medicine, University of Manitoba, Winnipeg, MB R3T 2N2, Canada
Nancy Jokinen: School of Social Work, University of Northern British Columbia, Prince George, BC V2N 4Z9, Canada
Leslie Udell: NTG Canadian Consortium c/o Reena, 927 Clark Ave West, Thornhill, ON L4J 8G6, Canada
Sandy Stemp: NTG Canadian Consortium c/o Reena, 927 Clark Ave West, Thornhill, ON L4J 8G6, Canada
Tracey Berman: Reena, 927 Clark Ave West, Thornhill, ON L4J 8G6, Canada
Shahin Shooshtari: Department of Community Health Sciences, Rady Faculty of Health Sciences, Max Rady College of Medicine, University of Manitoba, Winnipeg, MB R3T 2N2, Canada

IJERPH, 2025, vol. 22, issue 5, 1-10

Abstract: We conducted a survey to learn what guides current dementia-related practice to support community-dwelling adults with intellectual and developmental disabilities who may be experiencing dementia in Canada. We invited organizations working in health, disability, or senior sectors in 4 Canadian provinces to complete an online cross-sectional survey between April and July 2023. A total of 173 people completed the survey, representing 125 unique organizations, and nearly half resided in Ontario. The most common support and services provided to adults with intellectual and developmental disabilities and their families were related to residential care, day programming, and group home living. Half of our survey respondents reported that they followed dementia-related practice guidelines. The most common guideline followed and early detection tool used were from the National Task Group on Intellectual Disabilities and Dementia Practices and the National Task Group-Early Detection and Screen for Dementia, respectively. Lack of awareness about guidelines and detection tools, challenges to implement the same, and organizational needs for future training and service provision were identified. Commitment to resources to monitor adults with IDD who may be experiencing dementia is recommended to provide meaningful support and service to them and their families.

Keywords: intellectual and developmental disability; dementia; dementia-related practice; disability-related practice; community living; disability-related organizations (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2025
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