Self-Advocacy in Inclusive Research

Courtney Krueger, Lieke van Heumen () and Claire van den Helder
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Courtney Krueger: Special Olympics Illinois, USA
Lieke van Heumen: Department of Disability and Human Development, University of Illinois Chicago, 1640 W. Roosevelt Rd, Chicago, IL 60608, USA
Claire van den Helder: Department of Disability and Human Development, University of Illinois Chicago, 1640 W. Roosevelt Rd, Chicago, IL 60608, USA

Social Sciences, 2024, vol. 13, issue 3, 1-30

Abstract: The literature on inclusive research has established its relationship with self-advocacy for people with intellectual disabilities. Self-advocacy has been described as both a requirement and a result of inclusive research. Additionally, the process of becoming an inclusive researcher can be seen as self-advocacy for people with intellectual disabilities. As inclusive research continues to become more prominent, and more people with intellectual disabilities become inclusive researchers, we need to continue to consider this fundamental relationship and how self-advocacy and inclusive research can inform and support each other. In this paper, we first discuss the history of self-advocacy and inclusive research and what inclusive researchers have shared about the relationship between self-advocacy and inclusive research. We then present the experiences of an inclusive researcher with intellectual disability with self-advocacy and how the process of becoming an inclusive researcher impacted those experiences. We conclude the paper with reflections on how future inclusive research should consider the role of self-advocacy.

Keywords: inclusive research; self-advocacy; intellectual disabilities; history; plain language summaries; research with people with intellectual disabilities (search for similar items in EconPapers)
JEL-codes: A B N P Y80 Z00 (search for similar items in EconPapers)
Date: 2024
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