Translation and Linguistic Validation of a Swedish Study-Specific Questionnaire for Use among Norwegian Parents Who Lost a Child to Cancer

Hilde-Kristin Vegsund, Toril Rannestad, Trude Reinfjell, Unni Karin Moksnes, Alexandra Eilegård Wallin and Mary-Elizabeth Bradley Eilertsen
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Hilde-Kristin Vegsund: Department of Public Health and Nursing, Centre for Health Promotion Research, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway
Toril Rannestad: Department of Public Health and Nursing, Centre for Health Promotion Research, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway
Trude Reinfjell: Department of Psychology, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway
Unni Karin Moksnes: Department of Public Health and Nursing, Centre for Health Promotion Research, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway
Alexandra Eilegård Wallin: School of Education, Health and Society, Dalarna University, 791 88 Falun, Sweden
Mary-Elizabeth Bradley Eilertsen: Department of Public Health and Nursing, Centre for Health Promotion Research, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway

Social Sciences, 2018, vol. 7, issue 10, 1-18

Abstract: Background: Research is needed on how to help cancer-bereaved parents, as they are considered to be a vulnerable population and they are at risk of developing ill health following the loss of a child to cancer. The purpose of the present study was to translate and linguistically validate a Swedish study-specific questionnaire that was developed for Swedish cancer-bereaved parents. The translated questionnaire will be used in a nationwide study in Norway. Methods: Forward and backward translations of the Swedish study-specific questionnaire were conducted, followed by linguistic validation based on telephone interviews with six Norwegian cancer-bereaved parents. Result: It was found that several medical terms and conceptual issues were difficult for the Norwegian parents to understand. There were also four issues regarding the response alternatives. Conclusions: Although Sweden and Norway have quite similar cultures and languages, the results off this pilot study show that, to ensure the quality of a translated questionnaire, linguistic validation as well as translation is necessary.

Keywords: bereaved parents; childhood cancer; linguistic validation; pilot study; translation; vulnerable population (search for similar items in EconPapers)
JEL-codes: A B N P Y80 Z00 (search for similar items in EconPapers)
Date: 2018
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Persistent link: https://EconPapers.repec.org/RePEc:gam:jscscx:v:7:y:2018:i:10:p:187-:d:173627

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