LiveWell – Promoting Healthy Living and Wellbeing for Parkinson Patients through Social Network and ICT Training: Lessons Learnt and Best Practices

Maged N. Kamel Boulos, Emmanuel Ifeachor, Javier Escudero, Peng Zhao, Camille Carroll, Pedro Costa, Gerhard Doppler, Laura Carrasco Marín, Luiza Spiru, Kristin Helga Guðmundsdótti and Marija Kosem
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Maged N. Kamel Boulos: Alexander Graham Bell Centre for Digital Health, University of the Highlands and Islands, Inverness, UK
Emmanuel Ifeachor: Faculty of Science and Engineering, Plymouth University, Plymouth, UK
Javier Escudero: School of Engineering, Edinburgh University, Edinburgh, UK
Peng Zhao: Faculty of Science and Engineering, Plymouth University, Plymouth, UK
Camille Carroll: Plymouth University, Plymouth, UK
Pedro Costa: INOVAMAIS – Serviços de Consultadoria em Inovação Tecnológica, S.A., Matosinhos, Portugal
Gerhard Doppler: International Development, Bit media e-solutions GmbH, Graz, Austria
Laura Carrasco Marín: Asociacíon Parkinson Madrid, Madrid, Spain
Luiza Spiru: Ana Aslan International Foundation, Bucharest, Romania
Kristin Helga Guðmundsdótti: Samvil ehf. Fjarkennsla.com, Reykjavik, Iceland
Marija Kosem: Splošna bolnišnica Brežice, Brežice, Slovenia

International Journal of Healthcare Information Systems and Informatics (IJHISI), 2015, vol. 10, issue 3, 24-41

Abstract: About 1.2 million people in Europe have Parkinson's disease (PD). PD patients often suffer from social exclusion and depression due to progressive lack of control over the disease. Eventually, most require constant care, leading to huge socioeconomic burdens. To partially tackle this issue, 7 partners in 7 countries participated in LiveWell (EU-funded project, 2012-14) to develop an innovative Web-based education, training and social community platform targeting PD patients, carers and clinicians. This paper describes LiveWell from conception to completion, presents lessons learnt over the course of the project, and highlights some identified main areas of best practice. The Project Consortium might not have had the chance to implement everything learnt in the current outputs, but these lessons and guidelines can be later used to improve LiveWell, and can also be generalised to benefit similar e-health services. The combination of appropriate online education and social communities could help patients and carers cope positively with PD, promoting social inclusion and better outcomes.

Date: 2015
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Persistent link: https://EconPapers.repec.org/RePEc:igg:jhisi0:v:10:y:2015:i:3:p:24-41

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