End-of-Life Decision-Making for Severely Ill Newborns: Neonatologists' Point of View and the Greek Legislation

Ilias Chatziioannidis, Evangelia Gkiougki, Abraham Pouliakis, Zoi Iliodromiti, Rozeta Sokou, Takis Vidalis, Theodora Boutsikou, Theodoros Xanthos and Nicoletta Iacovidou
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Ilias Chatziioannidis: 2nd Neonatal Department and Neonatal Intensive Care Unit, Aristotle University of Thessaloniki, Greece
Evangelia Gkiougki: Conseillère Direction Médicale CHR, Belgium
Abraham Pouliakis: 2nd Department of Pathology. National and Kapodistrian University of Athens, Greece
Zoi Iliodromiti: Neonatal Department, National and Kapodistrian University of Athens, Greece & Aretaieio Hospital, Greece
Rozeta Sokou: Neonatal Department, National and Kapodistrian University of Athens, Greece & Aretaieio Hospital, Greece
Takis Vidalis: Hellenic National Bioethics Commission, Greece
Theodora Boutsikou: Department of Neonatology, National and Kapodistrian University of Athens, Greece & Aretaieio Hospital, Greece
Theodoros Xanthos: European University of Cyprus, Cyprus
Nicoletta Iacovidou: Neonatal Department, National and Kapodistrian University of Athens, Greece & Aretaieio Hospital, Greece

International Journal of Reliable and Quality E-Healthcare (IJRQEH), 2020, vol. 9, issue 4, 8-17

Abstract: Advances in neonatology enabled significant improvements in neonatal survival, often at the expense of long-term morbidity. End-of-life decisions concern neonatal patients with fatal congenital anomalies, severe neurological deficits, and extreme prematurity at the limits of viability, presenting a complex issue for both healthcare professionals and parents. Since newborns cannot express their wishes or claim their rights, physicians and parents carry the responsibility to decide in their best interests, considering their future quality of life. Harmonization of scientific progress and legislation defining clear rules is necessary so neonatologists can proceed to such agonizing decisions. Greece lacks both specific legislation regarding such decisions and medical training on handling respective ethical dilemmas. Thus, guidelines improving such decisions are closely related to the quality of the healthcare system and should be established along with the legal system's adaptation.

Date: 2020
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Persistent link: https://EconPapers.repec.org/RePEc:igg:jrqeh0:v:9:y:2020:i:4:p:8-17

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