Epidemiological features and socioeconomic burden of childhood Wilson Disease

Alexandra Moraru ()
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Alexandra Moraru: Doctoral researcher at Carol Davila University of Medicine and Pharmacy Bucharest, Romania

Romanian Journal of Economics, 2015, vol. 40, issue 1(49), 198-209

Abstract: Wilson Disease is a rare autosomal recessive disorder of copper metabolism with a disabling chronic evolution. This condition requires lifelong treatment of the patient. Positive diagnosis is hard to establish due to the fact that a single test alone does not provide certainty. After the diagnosis is established the chelating treatment must be started. Delaying the treatment can be fatal to the patient. The socioeconomic factor is very important during the diagnostic stage and monitoring of the patient. In special literature, this subject is not addressed. This factor must not be ignored, especially in Romania. The purpose of this paper is to highlight the costs generated by the diagnosis and treatment of Wilson Disease in South-Eastern Romania taking into consideration the main research results of a study elaborated in the Grigore Alexandrescu Emergency Hospital for Children, in Bucharest, between January 2004 and December 2014.

Keywords: children Wilson Disease; rare disease; socioeconomic; medicoeconomic (search for similar items in EconPapers)
JEL-codes: I10 I15 (search for similar items in EconPapers)
Date: 2015
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Persistent link: https://EconPapers.repec.org/RePEc:ine:journl:v:40:y:2015:i:49:p:198-209

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