Preferences of the French Population Regarding Access to Genetic Information: A Discrete Choice Experiment

Christine Peyron, Aurore Pélissier and Nicolas Krucien

Economie et Statistique / Economics and Statistics, 2021, issue 524-525, 65-84

Abstract: [eng] This study analyses the preferences of the French population with regard to the genetic information that is potentially accessible thanks to genomic medicine. More specifically, it is a question of knowing whether or not the French population (i) is in favour of knowing all possible results with regard to genetic predispositions; (ii) has preferences with regard to the person or the method that would decide upon the list of accessible results; (iii) is in favour of researchers having access to patients’ genetic data. This study makes use of the discrete choice method, with an online survey, conducted in France with a representative sample of 2,501 respondents. The choice data were analyzed in a mixed logit model, to explore the variability of preferences. The results show a preference for autonomy in choosing the information communicated, to access the most comprehensive genetic results possible and for a contribution to research through the provision of genetic data.

JEL-codes: C25 I1 O33 (search for similar items in EconPapers)
Date: 2021
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Persistent link: https://EconPapers.repec.org/RePEc:nse:ecosta:ecostat_2021_524d_5

DOI: 10.24187/ecostat.2021.524d.2044

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