Consent for Use of Clinical Leftover Biosample: A Survey among Chinese Patients and the General Public

Yi Ma, HuiLi Dai, LiMin Wang, LiJun Zhu, HanBing Zou and XianMing Kong

PLOS ONE, 2012, vol. 7, issue 4, 1-7

Abstract: Background: Storage of leftover biosamples generates rich biobanks for future studies, saving time and money and limiting physical impact to sample donors. Objective: To investigate the attitudes of Chinese patients and the general public on providing consent for storage and use of leftover biosamples. Design, Setting and Participants: Cross-sectional surveys were conducted among randomly selected patients admitted to a Shanghai city hospital (n = 648) and members of the general public (n = 492) from May 2010 to July 2010. Main Outcome Measures: Face-to-face interviews collected respondents-report of their willingness to donate residual biosample, trust in medical institutions, motivation for donation, concerns of donated sample use, expectations for research results return, and so on. Results: The response rate was 83.0%. Of the respondents, 89.1% stated that they completely understood or understood most of questions. Willingness to donate residual sample was stated by 64.7%, of which 16.7% desired the option to withdraw their donations anytime afterwards. Only 42.3% of respondents stated they “trust" or “strongly trust" medical institutions, the attitude of trusting or strongly trusting medical institutions were significantly associated with willingness to donate in the general public group.(p

Date: 2012
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Persistent link: https://EconPapers.repec.org/RePEc:plo:pone00:0036050

DOI: 10.1371/journal.pone.0036050

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