Risk knowledge of people with relapsing-remitting multiple sclerosis – Results of an international survey

Andrea Giordano, Katrin Liethmann, Sascha Köpke, Jana Poettgen, Anne Christin Rahn, Jelena Drulovic, Yesim Beckmann, Jaume Sastre-Garriga, Ian Galea, Marco Heerings, Peter Joseph Jongen, Eik Vettorazzi, Alessandra Solari, Christoph Heesen and on behalf of the AutoMS Group

PLOS ONE, 2018, vol. 13, issue 11, 1-12

Abstract: Background: Adequate disease and treatment-related risk knowledge of people with Multiple Sclerosis (pwMS) is a prerequisite for informed choices in medical encounters. Previous work showed that MS risk knowledge is low among pwMS and role preferences are different in Italy and Germany. Objective: We investigated the level of risk knowledge and role preferences in 8 countries and assessed putative variables associated with risk knowledge. Methods: An online-survey was performed based on the Risk knowledge questionnaire for people with relapsing-remitting MS (RIKNO 2.0), the electronic Control Preference Scale (eCPS), and other patient questionnaires. Inclusion criteria of participants were: (1) age ≥18 years, (2) a diagnosis of relapsing-remitting MS (RRMS), (3) being in a decision making process for a disease modifying drug. Results: Of 1939 participants from Germany, Italy, the Netherlands, Serbia, Spain and Turkey, 986 (51%) (mean age 38.6 years [range 18–67], 77% women, 7.8 years of disease duration) completed the RIKNO 2.0, with a mean of 41% correct answers. There were less than 50 participants in the UK and Estonia and data were not analysed. Risk knowledge differed across countries (p

Date: 2018
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Persistent link: https://EconPapers.repec.org/RePEc:plo:pone00:0208004

DOI: 10.1371/journal.pone.0208004

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