But Women Can't Have ‘Hemophilia’!: A Look at the Lives of Women with Bleeding Disorder

Diane Kholos Wysocki

Sociological Research Online, 1998, vol. 3, issue 4, 14-25

Abstract: Most of the literature about hemophilia has been from a medical perspective and about men. This on-going project has been to document the lives and ‘voices’ of women who have a bleeding disorder, their experiences with the medical community, and the course of their diagnosis and treatment. The women in this study were predominantly Caucasian (92%), were currently married (66.7%), had (68.9%), and of those women who had children, the majority of their children (67.9%), both boys and girls, as well as other family members(63.3%) had some type of bleeding disorder. Findings revealed there was on average, a 14 year gap between the first bleeding episode and the diagnosis of a bleeding disorder. Women reported long, heavy menstrual cycles and having consulted a physician for menstrual bleeding as teenagers. Treatments for menstrual bleeding included D and C's (42.9%) and hysterectomies (34.5%), while referrals to Hemophilia Treatment Centers for a consultation were rare.

Keywords: Gynecological Surgery; Hemophilia; Menorrhagia; Von Willebrand Disease; Women (search for similar items in EconPapers)
Date: 1998
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Persistent link: https://EconPapers.repec.org/RePEc:sae:socres:v:3:y:1998:i:4:p:14-25

DOI: 10.5153/sro.194

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