Development of a Health Related Quality of Life Measure for Adolescents and Young Adults Following Invasive Meningococcal Disease

Mark Shevlin, Pietro G. Coen, Jennie Borg, Robert Booy, Russell M. Viner and Deborah Christie ()
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Mark Shevlin: University of Ulster at Magee Campus
Pietro G. Coen: University of London
Jennie Borg: UCL Institute of Child Health
Robert Booy: Children’s Hospital at Westmead and University of Sydney and Sydney Institute of Emerging Infectious Diseases and Biosecurity
Russell M. Viner: UCL Institute of Child Health
Deborah Christie: University College London Hospitals

Applied Research in Quality of Life, 2016, vol. 11, issue 3, No 19, 982 pages

Abstract: Abstract This study describes the key areas that matter to adolescent survivors of Invasive Meningococcal Disease (IMD). Satisfaction with Life After Meningitis is a brief multidimensional measure of health related quality of life that is reliable and correlates with criterion variables in a theoretically meaningful way. To develop a Health Related Quality of Life (HRQoL) measure for adolescent and young adult survivors of (IMD) we used a cross-sectional study and focus groups. The study was conducted in two phases. In Phase 1 a pool of potential items were generated based on the following: a review of existing measures, focus groups with IMD survivors, and an expert group consultation. Phase 2 involved administration of the questionnaire to a sample of adolescent and young adult IMD survivors. Factor analysis suggested a correlated four factor solution: Wellbeing, Positive about Future, Social Support, and Confidence. These factors were significantly correlated in a theoretically predictable way with scores from the Beck Depression Inventory (correlations ranged from −0.77 to −0.81) and the eight domains of the SF-36 Health Survey (correlations ranged from 0.32 to 0.79). The reliability of all subscales was high ranging from 0.85 to 0.92. The Satisfaction with Life After Meningitis (SLAM) questionnaire is a HRQoL self-report measure that produces reliable scores and is appropriate for use with young survivors of IMD. There is also evidence of concurrent validity with existing measures of physical and psychological well-being.

Keywords: Adolescence; Young adults; Invasive meningococcal disease; Health related quality of life; Questionnaire (search for similar items in EconPapers)
Date: 2016
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DOI: 10.1007/s11482-015-9416-9

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