A Brief Version of the Quality of Life in Short Stature Youth Questionnaire - the QoLISSY-Brief

Anja C. Rohenkohl (), Monika Bullinger, Andreas M. Pleil, Levente Kriston and Julia H. Quitmann
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Anja C. Rohenkohl: University Medical Center Hamburg – Eppendorf
Monika Bullinger: University Medical Center Hamburg – Eppendorf
Andreas M. Pleil: Global Health & Value Pfizer, Inc
Levente Kriston: University Medical Center Hamburg – Eppendorf
Julia H. Quitmann: University Medical Center Hamburg – Eppendorf

Child Indicators Research, 2016, vol. 9, issue 4, No 6, 984 pages

Abstract: Abstract The Quality of Life in Short Stature Youth (QoLISSY) questionnaire measures health-related quality of life (HrQoL) in short statured children (8–18 years) from patient and parent perspectives. To minimize respondent burden when assessing HrQoL in clinical practice, a brief version of the currently available 22-item QoLISSY is needed. The dataset of the European QoLISSY study (N = 268) was divided into two subdatasets at random, one to identify the items of the brief questionnaire and the other to test the operating characteristics (reliability and validity). Concept-based construction involved the selection of three items per Quality of Life (QoL)-dimension (physical, social, emotional) according to the highest corrected item-scale correlation. Psychometric properties were inspected in terms of reliability and validity supplemented by testing item fit statistics to examine item response theory (IRT) compliance. Cronbach’s alpha for the 9-item version was 0.89 for the patient- and the parent report. Pearson’s correlations with the generic KIDSCREEN questionnaire were low to moderate (children: r = 0.17–0.58; parents: r = 0.12–0.56). Shorter children reported significantly poorer QoL (mean difference 15.39 points; p

Keywords: Children; Short stature; Quality of life; Questionnaire; Brief version (search for similar items in EconPapers)
Date: 2016
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DOI: 10.1007/s12187-015-9350-2

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