Measuring EQ-5D-5L utility values in parents who have experienced perinatal death

Elizabeth M. Camacho (), Katherine J. Gold, Margaret Murphy, Claire Storey and Alexander E. P. Heazell
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Elizabeth M. Camacho: University of Liverpool
Katherine J. Gold: University of Michigan Medical School
Margaret Murphy: University College Cork
Claire Storey: Tommy’s Stillbirth Research Centre, University of Manchester
Alexander E. P. Heazell: University of Manchester

The European Journal of Health Economics, 2024, vol. 25, issue 8, No 7, 1383-1391

Abstract: Abstract Background Policymakers use clinical and cost-effectiveness evidence to support decisions about health service commissioning. In England, the National Institute for Health and Care Excellence (NICE) recommend that in cost-effectiveness analyses “effectiveness” is measured as quality-adjusted life years (QALYs), derived from health utility values. The impact of perinatal death (stillbirth/neonatal death) on parents’ health utility is currently unknown. This knowledge would improve the robustness of cost-effectiveness evidence for policymakers. Objective This study aimed to estimate the impact of perinatal death on parents’ health utility. Methods An online survey conducted with mothers and fathers in England who experienced a perinatal death. Participants reported how long ago their baby died and whether they/their partner subsequently became pregnant again. They were asked to rate their health on the EQ-5D-5L instrument (generic health measure). EQ-5D-5L responses were used to calculate health utility values. These were compared with age-matched values for the general population to estimate a utility shortfall (i.e. health loss) associated with perinatal death. Results There were 256 survey respondents with a median age of 40 years (IQR 26–40). Median time since death was 27 months (IQR 8–71). The mean utility value of the sample was 0.774 (95% CI 0.752–0.796). Utility values in the sample were 13% lower than general population values (p

Keywords: Health utility values; EQ-5D; Stillbirth; Neonatal death; Foetal death (search for similar items in EconPapers)
JEL-codes: I1 I19 (search for similar items in EconPapers)
Date: 2024
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DOI: 10.1007/s10198-024-01677-z

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