Dementia Family Caregivers’ Willingness to Pay for an In-home Program to Reduce Behavioral Symptoms and Caregiver Stress

Eric Jutkowitz (), Danny Scerpella, Laura T. Pizzi, Katherine Marx, Quincy Samus, Catherine Verrier Piersol and Laura N. Gitlin
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Eric Jutkowitz: Brown University School of Public Health
Danny Scerpella: Johns Hopkins University Center for Innovative Care in Aging
Laura T. Pizzi: Rutgers University Ernest Mario School of Pharmacy
Katherine Marx: Johns Hopkins University School of Medicine
Quincy Samus: Johns Hopkins University School of Medicine
Catherine Verrier Piersol: Thomas Jefferson University
Laura N. Gitlin: Johns Hopkins University Center for Innovative Care in Aging

PharmacoEconomics, 2019, vol. 37, issue 4, No 11, 563-572

Abstract: Abstract Objectives Our objective was to determine whether family caregivers of people with dementia (PwD) are willing to pay for an in-home intervention that provides strategies to manage behavioral symptoms and caregiver stress and to identify predictors of willingness-to-pay (WTP). Methods During baseline interviews of a randomized trial and before treatment assignment, caregivers were asked how much they were willing to pay per session for an eight-session program over 3 months. We stratified the sample into those who refused to provide a WTP, those willing to pay $US0, and those willing to pay > $US0. We used a two-part model, controlling for demographic characteristics, to predict adjusted mean WTP and to examine associations between WTP, clinical features (cognition, function, behavioral symptoms), and time spent assisting PwD with daily activities. First, we used logistic regression to model the probability a caregiver was willing to pay > $US0. Second, we used a generalized linear model (log link and Gamma distribution) to estimate the amount caregivers were willing to pay conditional on WTP > $US0. Results Of 250 dyads enrolled, 226 (90%) had complete data and were included in our analyses. Of 226 dyads, 26 (11%) refused to provide a WTP value, 72 (32%) were willing to pay $US0, and 128 (57%) were willing to pay > $US0. In the combined model, mean adjusted WTP was $US36.00 (95% confidence interval [CI] 26.72–45.27) per session. Clinical features were not significantly associated with WTP. One additional hour providing PwD assistance was associated with a $US1.64 (95% CI 0.23–3.04) increase in WTP per session. Conclusion As caregivers spend more time assisting with daily activities, they are willing to pay more for a supportive program. Clinical Trial Registration Number NCT01892579.

Date: 2019
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DOI: 10.1007/s40273-019-00785-6

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