Narrative 5: Locked-in, locked-down: lived experience of a non-speaker

Tim Chan

Chapter 18 in Research Handbook on Disability Policy, 2023, pp 233-233 from Edward Elgar Publishing

Abstract: My earliest memories were a huge jumble of confusion, with numerous challenges figuring out my world. Being diagnosed with locked-in syndrome at 14 confirmed what I’ve always known; that I had the potential to learn and understand the world. Given the necessary support and encouragement to learn at my own pace, the tide began to turn. With better understanding of the world and people, I gradually enjoyed participating in new experiences. Facilitated communication opened many doors, including the ability to “talk” to people with a voice-generating device. I became able to connect with people, participate more fully in social activities and do things most people take for granted like go to mainstream school, to emerge into a new life as a person in my own right. I’m seeing that inclusion derives from the ability to empathise and identify with people with differences.

Keywords: Development Studies; Economics and Finance; Research Methods; Sociology and Social Policy (search for similar items in EconPapers)
Date: 2023
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