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Questioning the dominant welfare discourse on personalization and autonomy embodied in personal budget policy

Toon Benoot and Rudi Roose

Chapter 30 in Research Handbook on Disability Policy, 2023, pp 361-373 from Edward Elgar Publishing

Abstract: Personal budget policies have been introduced in various welfare regimes as a means to integrate a demand-driven approach in the sector of care and support for people with disabilities. This chapter unravels how personal budget policies have clear roots in a humanist discourse that emphasizes a rational citizen as a neutral description of the human being. The experiences of ten people with intellectual disabilities who took part in a participatory photovoice project challenge this discourse through revealing that autonomy and personalization are primarily relational concepts. We draw from these stories to argue for a critical view on human rights that balances the usefulness of an appeal to individual human rights against a careful consideration of what is achieved through such an appeal. That implies the need for a continued inquiry that maximizes the diversity of the notions of personalization and autonomy.

Keywords: Development Studies; Economics and Finance; Research Methods; Sociology and Social Policy (search for similar items in EconPapers)
Date: 2023
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