The Law and Ethics of Data Sharing in Health Sciences

Edited by Marcelo Corrales Compagnucci (), Timo Minssen (), Mark Fenwick (), Mateo Aboy () and Kathleen Liddell ()

in Perspectives in Law, Business and Innovation from Springer, currently edited by Toshiyuki Kono

Date: 2024
ISBN: 978-981-99-6540-3
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Chapters in this book:

The Dynamic Context and Multiple Challenges of Data Sharing

Marcelo Corrales Compagnucci, Mark Fenwick, Timo Minssen and Mateo Aboy

The GA4GH Regulatory and Ethics Work Stream (REWS) at 10: An Interdisciplinary, Participative Approach to International Policy Development in Genomics

Yann Joly, Edward Dove, Bartha Maria Knoppers and Dianne Nicol

Assessing Public and Private Rights of Action to Police Health Data Sharing

David A. Simon, Carmel Shachar and I. Glenn Cohen

Patient Perspectives on Data Sharing

Louise C. Druedahl and Sofia Kälvemark Sporrong

Operationalizing the Use of Existing Data in Support of Biomedical Research and Innovation: An Inclusive and Sustainable Approach

Helen Yu

Dobbs in a Technologized World: Implications for US Data Privacy

Jheel Gosain, Jason D. Keune and Michael S. Sinha

Consent and Retrospective Data Collection

Tima Otu Anwana, Katarzyna Barud, Michael Cepic, Emily Johnson, Max Königseder and Marie-Catherine Wagner

Enabling Secondary Use of Health Data for the Development of Medical Devices Based on Machine Learning

Lea Köttering

Supplementary Measures and Appropriate Safeguards for International Transfers of Health Data After Schrems II

Marcelo Corrales Compagnucci, Mark Fenwick, Mateo Aboy and Timo Minssen

The Internal Network Structure that Affects Firewall Vulnerability

Shinto Teramoto, Shizuo Kaji and Shota Osada

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DOI: 10.1007/978-981-99-6540-3

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