Genetic Prevention, Carrier Screening and the Role of Citizens: The Legitimisation of Libertarian Paternalist Policies by Deliberative Democracy

Baroukh Maurice Assael () and Giovanni Boniolo ()
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Baroukh Maurice Assael: University of Milano, Medical School, Cystic Fibrosis Adult Center
Giovanni Boniolo: Università di Ferrara, Dipartimento di Scienze Biomediche e Chirurgico Specialistiche

A chapter in Philosophical and Methodological Debates in Public Health, 2019, pp 149-161 from Springer

Abstract: Abstract In this paper, first we recall some paradigmatic ways of implementing carrier screening policies in a community. Then we move on to a proposal concerning a possible bottom-up solution based on deliberative democracy (and thus on real citizens’ participation in decisional processes) that should legitimate libertarian paternalist strategies concerning which genetic screenings should be made and which policies should be adopted by the institutions.

Keywords: Genetic prevention; Carrier screening; Libertarian paternalism; Deliberative democracy; Citizen participation (search for similar items in EconPapers)
Date: 2019
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Persistent link: https://EconPapers.repec.org/RePEc:spr:sprchp:978-3-030-28626-2_11

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DOI: 10.1007/978-3-030-28626-2_11

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