Institutional Data Governance and Management

Jian Guan ()
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Jian Guan: Peking Union Medical College Hospital, Peking Union Medical College (PUMC) & Chinese Academy of Medical Sciences (CAMS)

Chapter Chapter 6 in Governance and Management of Medical Scientific Data Sharing and Application, 2026, pp 167-199 from Springer

Abstract: Abstract Institutional governance is a fundamental component of the data-governance framework. The institutional governance framework is based on national policies and legislation on data management and research ethics as well as international regulations and industry standards. The framework should establish a governance management system designed to protect the rights and interests of the state, institutions, and stakeholders. Here, We outline an institutional system for health data that defines the responsible departments, committees, and personnel along with their specific duties; clarifies internal and external data management systems, documentation, and processes, particularly the internal strategies and measures for efficiency. Moreover, we highlight the key elements of the data ethics review guidelines we established, which are contingent upon the temporal context, have been developed through expert consensus, and established as a team standard.

Keywords: Guidelines; Data ethics review; Review principles; personal information; Data; Algorithms; Digital intelligence; Artificial intelligence; Scientific and technological activities (search for similar items in EconPapers)
Date: 2026
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Persistent link: https://EconPapers.repec.org/RePEc:spr:sprchp:978-981-95-2806-6_6

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DOI: 10.1007/978-981-95-2806-6_6

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