Evidence-based activism: Patients’ organisations, users’ and activist’s groups in knowledge society

Vololona Rabeharisoa
Additional contact information
Vololona Rabeharisoa: Centre de Sociologie de l'Innovation, Mines ParisTech

No 33, CSI Working Papers Series from Centre de Sociologie de l'Innovation (CSI), Mines ParisTech

Abstract: This article proposes the notion of ‘evidence-based activism’ to capture patients’ and health activists’ groups’ focus on knowledge production and knowledge mobilisation in the governance of health issues. It shows how these groups engage with, and articulate a variety of credentialed knowledge and ‘experiential knowledge’ with a view to explore concerned people’s situations, to make themselves part and parcel of the networks of expertise on their conditions in their national contexts, and to elaborate evidence on the issues they deem important to address both at an individual and a collective level.

Keywords: evidence-based activism; patients’ and health activists’ groups; expertise; healthcare policies; collective inquiry; technological democracies (search for similar items in EconPapers)
JEL-codes: I18 Z18 (search for similar items in EconPapers)
Pages: 27 pages
Date: 2013-05
New Economics Papers: this item is included in nep-cdm, nep-knm and nep-net
References: View references in EconPapers View complete reference list from CitEc
Citations: View citations in EconPapers (1)

Downloads: (external link)
http://www.csi.mines-paristech.fr/working-papers/DLWP.php?wp=WP_CSI_033.pdf (application/pdf)

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:emn:wpaper:033

Access Statistics for this paper

More papers in CSI Working Papers Series from Centre de Sociologie de l'Innovation (CSI), Mines ParisTech Contact information at EDIRC.
Bibliographic data for series maintained by Florence Paterson ().