How Can Contingent Valuation Inform the Bioethics Debate? Evidence from a Survey on Hereditary Cancers in France
Christel Protière,
Olivier Chanel,
Emmanuelle Mouret-Fourme,
Claire Julian-Reynier,
Catherine Noguès () and
Isabelle Coupier
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Emmanuelle Mouret-Fourme: Hôpital René Huguenin [Saint-Cloud] - ICSC - Institut Curie - Saint Cloud
Claire Julian-Reynier: SESSTIM - U912 INSERM - Aix Marseille Univ - IRD - Sciences Economiques et Sociales de la Santé & Traitement de l'Information Médicale - IRD - Institut de Recherche pour le Développement - AMU - Aix Marseille Université - INSERM - Institut National de la Santé et de la Recherche Médicale
Catherine Noguès: Hôpital René Huguenin [Saint-Cloud] - ICSC - Institut Curie - Saint Cloud
Isabelle Coupier: Unité d'Oncogénétique - CRLCC Val d'Aurelle - Paul Lamarque, Service de génétique médicale [Montpellier] - CHRU Montpellier - Centre Hospitalier Régional Universitaire [Montpellier] - Hôpital Arnaud de Villeneuve [CHU Montpellier] - CHRU Montpellier - Centre Hospitalier Régional Universitaire [Montpellier]
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Abstract:
BRCA1/2 carriers have a higher risk of developing breast and ovarian cancer at a younger age. Preimplantation genetic diagnosis (PGD) and prenatal diagnosis (PND) are two of the few options available to avoid transmitting the mutation. To inform the bioethics debate about authorization, a contingent valuation survey elicited preferences regarding access to PGD and PND from a sample of 460 unaffected by cancer BRCA1/2 carriers (GENEPSO cohort). We find that the respondents can be classified into three groups: one opposed to PGD/PND (28.3%), one strongly in favour of PGD/PND (45.8%), and one in an intermediate position (25.9%). We look for the determinants of these preferences, especially of the willingness to pay for PGD/PND. Overall, we find that BRCA1/2 carriers support access to PGD/PND, which has implications for recommendations to decision-makers.
Keywords: Economie; quantitative (search for similar items in EconPapers)
Date: 2017-05
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Published in Revue Economique, 2017, 68 (3), pp.379--404. ⟨10.3917/reco.683.0379⟩
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Journal Article: How Can Contingent Valuation Inform the Bioethics Debate? Evidence from a Survey on Hereditary Cancers in France (2017) 
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Persistent link: https://EconPapers.repec.org/RePEc:hal:journl:hal-01589998
DOI: 10.3917/reco.683.0379
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