Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines

Brian Pickering, Timea Biro, Claire Austin, Alexander Bernier, Louise Bezuidenhout, Carlos Casorrán, Francis Crawley, Romain David (), Claudia Engelhardt, Geta Mitrea, Ingvill Constanze Mochmann, Rajini Nagrani (), Mary O'Brien-Uhlmansiek, Simon Parker, Minglu Wang, Leyla Jael Castro, Zoe Cournia, Kheeran Dharmawardena, Gayo Diallo (), Ingrid Dillo, Alejandra Gonzalez-Beltran, Anupama Gururaj, Sridhar Gutam, Natalie Harrower, Jitendra Jonnagaddala, Katherine Mcneill, Daniel Mietchen, Amy Pienta, Panayiota Polydoratou and Marcos Roberto Tovani-Palone
Additional contact information
Louise Bezuidenhout: University of Oxford
Carlos Casorrán: ULB - Département d'Informatique [Bruxelles] - ULB - Faculté des Sciences [Bruxelles] - ULB - Université libre de Bruxelles
Romain David: ERINHA-AISBL - European Research Infrastructure on Highly Pathogenic Agents
Claudia Engelhardt: SUB Göttingen - Göttingen State and University Library - Georg-August-University of Göttingen = Georg-August-Universität Göttingen
Simon Parker: DKFZ - German Cancer Research Center - Deutsches Krebsforschungszentrum [Heidelberg]
Gayo Diallo: BPH - Bordeaux population health - UB - Université de Bordeaux - Institut de Santé Publique, d'Épidémiologie et de Développement (ISPED) - INSERM - Institut National de la Santé et de la Recherche Médicale
Ingrid Dillo: DANS-KNAW - Data Archiving and Networked Services - KNAW - Royal Netherlands Academy of Arts and Sciences

Post-Print from HAL

Abstract: Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recommendations and guidelines for COVID-related data sharing. Purpose: The purpose of the present work was to explore how the RDA succeeded in engaging the participation of its community of scientists in a rapid response to the EC request. Methods: A survey questionnaire was developed and distributed among RDA COVID-19 work group members. A mixed-methods approach was used for analysis of the survey data. Results: The three constructs of radical collaboration (inclusiveness, distributed digital practices, productive and sustainable collaboration) were found to be well supported in both the quantitative and qualitative analyses of the survey data. Other social factors, such as motivation and group identity were also found to be important to the success of this extreme collaborative effort. Conclusions: Recommendations and suggestions for future work were formulated for consideration by the RDA to strengthen effective expert collaboration and interdisciplinary efforts.

Keywords: COVID-19; global health; public health; pandemic; epidemic; data sharing; radical collaboration; Research Data Alliance (search for similar items in EconPapers)
Date: 2021
Note: View the original document on HAL open archive server: https://hal.science/hal-03663823v1
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Published in Open Research Europe, 2021, 1, pp.69. ⟨10.12688/openreseurope.13369.1⟩

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Persistent link: https://EconPapers.repec.org/RePEc:hal:journl:hal-03663823

DOI: 10.12688/openreseurope.13369.1

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