Assessment of informal caregiver’s needs by self-administered instruments: a literature review

Anne Lefranc, David Pérol (), Morgane Plantier (), Pierre Chatelain, Henri de Rohan-Chabot and Matthias Schell
Additional contact information
David Pérol: Centre Léon Bérard [Lyon]
Morgane Plantier: LSAF - Laboratoire de Sciences Actuarielle et Financière - UCBL - Université Claude Bernard Lyon 1 - Université de Lyon, LéP [Poitiers] - Laboratoire d'économie de Poitiers - UP - Université de Poitiers = University of Poitiers
Pierre Chatelain: UCBL - Université Claude Bernard Lyon 1 - Université de Lyon
Matthias Schell: Centre Léon Bérard [Lyon]

Post-Print from HAL

Abstract: Clinicians, researchers and politicians are seeking to better assess caregiver's needs. Challenges exist in broadly implementing this so as to provide appropriate support. The aim of this review was to compile self-administered instruments for assessment of caregiver's needs that are deemed to be scientifically robust. The Medline database was searched for publications reporting self-administered instruments assessing caregiver's needs with acceptable psychometric properties. These instruments were analyzed in terms of the development context, target population, concept, purpose, structure, content and psychometric properties. The dimensions of the needs were listed and categorized. A total of nine self-administered instruments were analyzed. They averaged 32 items, they were specifically developed for a targeted subpopulation of caregivers and dedicated to epidemiological research. Response devices were based on Likert scales. The main dimensions of the needs identified were 'Health and Care', 'Psychological - Emotional Support', 'Information-Knowledge', 'Social Life-Work-Finance'. None was specifically geared toward caregivers for the elderly, children or teenagers. In the absence of transcultural validation, no instrument was directly usable in Europe. Assessing caregivers' needs is a key part in providing caregivers with appropriate support. The development of self-administered instruments constitutes a complex field that is still underexplored at the international level; strict specifications with psychometric validation are essential. To be efficient, the instrument should be integrated in a larger process including: upstream, recognition, identification and assessment of the overall situation of the caregiver; and downstream, guidance, establishment and follow-up of a suitable action plan.

Keywords: adolescent; emotions; caregivers; child; follow-up; medline; psychometrics; self administration; older adult; likert scale; politician (search for similar items in EconPapers)
Date: 2017-10-01
References: Add references at CitEc
Citations:

Published in European Journal of Public Health, 2017, 27 (5), pp.796-801. ⟨10.1093/eurpub/ckx103⟩

There are no downloads for this item, see the EconPapers FAQ for hints about obtaining it.

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:hal:journl:hal-04979533

DOI: 10.1093/eurpub/ckx103

Access Statistics for this paper

More papers in Post-Print from HAL
Bibliographic data for series maintained by CCSD ().