Hospital and the Forgotten Experience: Thirty Years of Care, Waiting, and Silence

Hôpital et oubli du ressenti: trente ans de soins, d’attente et de silence

Ainur Camber-Rougé ()
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Ainur Camber-Rougé: IRG - Institut de Recherche en Gestion - UPEC UP12 - Université Paris-Est Créteil Val-de-Marne - Paris 12 - Université Gustave Eiffel

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Abstract: This research examines how patients' lived experiences are incorporated into hospital organisations, drawing on an integrative literature review, Grounded Theory, and autoethnography. Based on thirty years of hospital experience used as an analytical lens, the study highlights a persistent gap between the theoretical recognition of the patient's voice and its limited influence on organisational decision-making. The analysis identifies twenty-one distinct meanings of the concept of "patient voice" in the literature, revealing a tendency to transform experiential accounts into managerial data—indicators, scores, and satisfaction metrics—at the expense of their lived and situated dimension. Mobilising insights from Bachelard, Weber, and Devereux, the research shows that the patient's voice is an organisational construct shaped by institutional norms, managerial tools, and governance practices. While experiential knowledge is increasingly acknowledged, its structuring power within healthcare organisations remains weak. This poster proposes an analytical framework to understand how organisations reformulate patient experience and interrogates the conditions required for its genuine integration into hospital governance.

Keywords: Patient voice; Experiential knowledge; Health care management; Hospital governance; Patient experience; Expérience patient; Gouvernance hospitalière; Management des organisations de santé; Savoirs expérientiels; Voix du patient (search for similar items in EconPapers)
Date: 2025-11-05
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Published in Congrès de la Société Française de Santé Publique, Nov 2025, Lille, France. ⟨10.3917/spub⟩

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Persistent link: https://EconPapers.repec.org/RePEc:hal:journl:hal-05378057

DOI: 10.3917/spub

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