The impact of institution use on the wellbeing of Alzheimer's disease patients and their caregivers

Thomas Rapp, Bénédicte Apouey and Claudia Senik ()
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Claudia Senik: PSE - Paris School of Economics - UP1 - Université Paris 1 Panthéon-Sorbonne - ENS-PSL - École normale supérieure - Paris - PSL - Université Paris Sciences et Lettres - EHESS - École des hautes études en sciences sociales - ENPC - École nationale des ponts et chaussées - CNRS - Centre National de la Recherche Scientifique - INRAE - Institut National de Recherche pour l’Agriculture, l’Alimentation et l’Environnement, PJSE - Paris Jourdan Sciences Economiques - UP1 - Université Paris 1 Panthéon-Sorbonne - ENS-PSL - École normale supérieure - Paris - PSL - Université Paris Sciences et Lettres - INRA - Institut National de la Recherche Agronomique - EHESS - École des hautes études en sciences sociales - ENPC - École nationale des ponts et chaussées - CNRS - Centre National de la Recherche Scientifique, UP4 - Université Paris-Sorbonne

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Abstract: In France, temporary institutionalization solutions for dependent elders have been encouraged since the early 2000s. They are targeting patients who are maintained at home, but may need temporary solutions to adjust the constraints of caregivers, e.g. to facilitate transitions between several informal care providers or to allow informal caregivers to leave for holidays. However, the influence of these solutions on dependent elders and their caregivers has not been explored yet. We use French longitudinal data (REAL.FR, 686 elders and their primary caregivers followed between 2000 and 2006) to explore the impact of institution placement on the wellbeing of both Alzheimer's disease patients and their primary informal caregivers. The data distinguishes permanent placements in institution from temporary stays. Using fixed-effect models, we quantify the change in patients' quality of life and caregivers' burden of care following the placement of patients. We find that permanent and temporary stays are associated with a decrease in informal caregivers' burden. However, only permanent stays lead to an improvement of patients' quality of life. Hence, taken together, the results suggest that while long-run placements may maximize the wellbeing of all the members of a household (patient and caregiver), this is not necessarily the case of short-term placements.

Keywords: France; Long-term care; Wellbeing; Alzheimer; Institution; Burden; Quality of life (search for similar items in EconPapers)
Date: 2018-06
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Published in Social Science & Medicine, 2018, 207, pp.1 - 10. ⟨10.1016/j.socscimed.2018.04.014⟩

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Journal Article: The impact of institution use on the wellbeing of Alzheimer's disease patients and their caregivers (2018)
Working Paper: The impact of institution use on the wellbeing of Alzheimer's disease patients and their caregivers (2018)
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Persistent link: https://EconPapers.repec.org/RePEc:hal:pseptp:hal-01784313

DOI: 10.1016/j.socscimed.2018.04.014

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