Detecting and Treating Psychosocial and Lifestyle-Related Difficulties in Chronic Disease: Development and Treatment Protocol of the E-GOAL eHealth Care Pathway

Cinderella K. Cardol, Judith Tommel, Henriët van Middendorp, Yvette Ciere, Jacob K. Sont, Andrea W. M. Evers and Sandra van Dijk
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Cinderella K. Cardol: Health, Medical and Neuropsychology Unit, Leiden University, 2333 AK Leiden, The Netherlands
Judith Tommel: Health, Medical and Neuropsychology Unit, Leiden University, 2333 AK Leiden, The Netherlands
Henriët van Middendorp: Health, Medical and Neuropsychology Unit, Leiden University, 2333 AK Leiden, The Netherlands
Yvette Ciere: Health, Medical and Neuropsychology Unit, Leiden University, 2333 AK Leiden, The Netherlands
Jacob K. Sont: Department of Biomedical Data Sciences, Section Medical Decision Making, Leiden University Medical Center, 2333 ZA Leiden, The Netherlands
Andrea W. M. Evers: Health, Medical and Neuropsychology Unit, Leiden University, 2333 AK Leiden, The Netherlands
Sandra van Dijk: Health, Medical and Neuropsychology Unit, Leiden University, 2333 AK Leiden, The Netherlands

IJERPH, 2021, vol. 18, issue 6, 1-23

Abstract: Many patients with lifestyle-related chronic diseases find it difficult to adhere to a healthy and active lifestyle, often due to psychosocial difficulties. The aim of the current study was to develop an eHealth care pathway aimed at detecting and treating psychosocial and lifestyle-related difficulties that fits the needs and preferences of individual patients across various lifestyle-related chronic diseases. Each intervention component was developed by (1) developing initial versions based on scientific evidence and/or the Behavior Change Wheel; (2) co-creation: acquiring feedback from patients and health professionals; and (3) refining to address users’ needs. In the final eHealth care pathway, patients complete brief online screening questionnaires to detect psychosocial and lifestyle-related difficulties, i.e., increased-risk profiles. Scores are visualized in personal profile charts. Patients with increased-risk profiles receive complementary questionnaires to tailor a 3-month guided web-based cognitive behavioral therapy intervention to their priorities and goals. Progress is assessed with the screening tool. This systematic development process with a theory-based framework and co-creation methods resulted in a personalized eHealth care pathway that aids patients to overcome psychosocial barriers and adopt a healthy lifestyle. Prior to implementation in healthcare, randomized controlled trials will be conducted to evaluate its cost-effectiveness and effectiveness on psychosocial, lifestyle, and health-related outcomes.

Keywords: lifestyle adherence; psychosocial adjustment; chronic disease management; intervention development; eHealth; screening; web-based cognitive-behavioral therapy; tailored personalized treatment; Behavior Change Wheel; co-creation (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
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