The Living Alone with Cognitive Impairment Project’s Policy Advisory Group on Long-Term Services and Supports: Setting a Research Equity Agenda

Elena Portacolone, Jacqueline M. Torres, Julene K. Johnson, Donna Benton, Thomas Rapp, Thi Tran, Paula Martinez and Carrie Graham
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Elena Portacolone: Institute for Health & Aging, University of California, San Francisco, CA 94158, USA
Jacqueline M. Torres: Department of Epidemiology and Biostatistics, University of California, San Francisco, CA 94158, USA
Julene K. Johnson: Institute for Health & Aging, University of California, San Francisco, CA 94158, USA
Donna Benton: Leonard Davis School of Gerontology, University of Southern California, Los Angeles, CA 90089, USA
Thi Tran: Institute for Health & Aging, University of California, San Francisco, CA 94158, USA
Paula Martinez: Institute for Health & Aging, University of California, San Francisco, CA 94158, USA
Carrie Graham: Institute for Health & Aging, University of California, San Francisco, CA 94158, USA

IJERPH, 2022, vol. 19, issue 10, 1-14

Abstract: (1) Background: A United States national policy advisory group (PAG) was convened to identify barriers and facilitators to expand formal long-term services and support (LTSS) for people living alone with cognitive impairment (PLACI), with a focus on equitable access among diverse older adults. The PAG’s insights will inform the research activities of the Living Alone with Cognitive Impairment Project, which is aimed at ensuring the equitable treatment of PLACI. (2) Methods: The PAG identified barriers and facilitators of providing effective and culturally relevant LTSS to PLACI via one-on-one meetings with researchers, followed by professionally facilitated discussions among themselves. (3) Results: The PAG identified three factors that were relevant to providing effective and culturally relevant LTSS to PLACI: (i) better characterization of PLACI, (ii) leveraging the diagnosis of cognitive impairment, and (iii) expanding and enhancing services. For each factor, the PAG identified barriers and facilitators, as well as directions for future research. (4) Conclusions: The barriers and facilitators the PAG identified inform an equity research agenda that will help inform policy change.

Keywords: living arrangements; health disparities; diagnosis; health care services; long-term services and supports; policy; United States (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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