The subjective value of a life with Down syndrome: Evidence from amnocentesis decision

Thibault Gajdos, Clémentine Garrouste and Pierre Geoffard
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Thibault Gajdos: LPC - Laboratoire de psychologie cognitive - AMU - Aix Marseille Université - CNRS - Centre National de la Recherche Scientifique, CREST - Centre de Recherche en Économie et Statistique - ENSAI - Ecole Nationale de la Statistique et de l'Analyse de l'Information [Bruz] - X - École polytechnique - IP Paris - Institut Polytechnique de Paris - ENSAE Paris - École Nationale de la Statistique et de l'Administration Économique - CNRS - Centre National de la Recherche Scientifique, CES - Centre d'économie de la Sorbonne - UP1 - Université Paris 1 Panthéon-Sorbonne - CNRS - Centre National de la Recherche Scientifique, THEMA - Théorie économique, modélisation et applications - CNRS - Centre National de la Recherche Scientifique - CY - CY Cergy Paris Université
Clémentine Garrouste: Legos - Laboratoire d'Economie et de Gestion des Organisations de Santé - Université Paris Dauphine-PSL - PSL - Université Paris Sciences et Lettres, LEDa - Laboratoire d'Economie de Dauphine - IRD - Institut de Recherche pour le Développement - Université Paris Dauphine-PSL - PSL - Université Paris Sciences et Lettres - CNRS - Centre National de la Recherche Scientifique

Université Paris1 Panthéon-Sorbonne (Post-Print and Working Papers) from HAL

Abstract: Using a simple theoretical decision model and an original database, we were able to elicit thedistribution of the utility value of having a child with Down syndrome for a large sample of Frenchpregnant women (n = 28, 341) between 2003 and 2007. We found that, on a scale where the value ofa fetal death is 0 and the value of a healthy child is 1, the mean value for a child with Down syndromeis about −0.6. Assuming that the policymaker used the same decision model as the women, we inferfrom the French amniocentesis reimbursement regulation an implicit social value for a child withDown syndrome of −2.5. We conclude from our study that the policymaker is more likely to preventthe birth of children with Down syndrome than French women themselves.

Keywords: Amniocentesis choices; Expected utility framework (search for similar items in EconPapers)
Date: 2021-09-23
New Economics Papers: this item is included in nep-upt
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Related works:
Working Paper: The subjective value of a life with Down syndrome: Evidence from amnocentesis decision (2021)
Working Paper: The subjective value of a life with Down syndrome: Evidence from amnocentesis decision (2021)
Journal Article: The subjective value of a life with Down syndrome: Evidence from amniocentesis decision (2016)
Working Paper: The subjective value of a life with Down syndrome: Evidence from amniocentesis decision (2016)
Working Paper: The subjective value of a life with Down syndrome: Evidence from amniocentesis decision (2016)
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