How are PCORI-Funded Researchers Engaging Patients in Research and What are the Ethical Implications?

Lauren E. Ellis and Nancy E. Kass

Mathematica Policy Research Reports from Mathematica Policy Research

Abstract: Despite growing interest in patient engagement in research, there are few empirical investigations of the nature of engagement and its effects.

Keywords: patient engagement; research ethics; qualitative methods; patient-centered outcomes research (search for similar items in EconPapers)
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