How Values Are Discussed, Reflected Upon, and Acted On by Patients and Family Caregivers in the Context of Heart Failure: A Scoping Review

Avery C. Bechthold, Christopher E. Knoepke, Deborah B. Ejem, Colleen K. McIlvennan, Rachel D. Wells, Daniel D. Matlock, Marie A. Bakitas and J. Nicholas Dionne-Odom
Additional contact information
Avery C. Bechthold: School of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA
Christopher E. Knoepke: Division of Cardiology, University of Colorado Anschutz Medical Campus, Aurora, CO, USA
Deborah B. Ejem: School of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA
Colleen K. McIlvennan: Division of Cardiology, University of Colorado Anschutz Medical Campus, Aurora, CO, USA
Rachel D. Wells: School of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA
Daniel D. Matlock: Adult and Child Consortium for Health Outcomes Research and Delivery Science, University of Colorado Anschutz Medical Campus, Aurora, CO, USA
Marie A. Bakitas: School of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA
J. Nicholas Dionne-Odom: School of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA

Medical Decision Making, 2023, vol. 43, issue 4, 508-520

Abstract: Purpose Values are critical to how individuals make decisions and cope, yet the values of heart failure (HF) patients and their family caregivers (FCGs) remain understudied. We sought to report the state of the science on how values are discussed, reflected upon, and acted on by patients with HF, their FCGs, or both related to health-related decision making and coping. Method A scoping review was conducted of empirical studies using the following keywords: “heart failure,†“values,†“decision-making,†and “coping.†PubMed, PsycINFO, and Scopus were searched from inception to June 2022 in English. Included articles reported values as a key finding (outcome/theme) in their abstract. Results Of 448 articles screened for eligibility, 16 met the inclusion criteria. Twelve articles reported findings addressing patient values, 3 addressed patient and FCG values, and 1 addressed FCG values. Values were reported to influence patient self-care behaviors and left ventricular assist device (LVAD) implantation decisions, although their prioritization varied across time and contexts. When prioritized values conflicted with recommended self-care activities, some patients modified their approach to achieving the value. Others modified or abandoned tasks in favor of the value and accompanying goals. Low motivation and alignment between unhealthy behaviors and values often led to nonadherent decisions. Five of 8 articles focusing on cardiac devices reported patient survival as the most prioritized value during implantation decisions. FCG values were rarely reported or evaluated separately from patient values. Patients leveraged several coping strategies, although the processes through which values affected coping was not described. Conclusions Prioritized values influenced HF-related decisions, including self-care and LVAD implantation. While several articles reported on coping and values, none described processes through which values affect coping, which highlights a research gap. Highlights Family caregiver values were rarely reported or evaluated separately from patient values, highlighting a gap in the literature.

Keywords: caregiver; coping; decision making; heart failure; implantable cardioverter defibrillator; left ventricular assist device; life goals; priorities; self-care; self-management; scoping review; values (search for similar items in EconPapers)
Date: 2023
References: View references in EconPapers View complete reference list from CitEc
Citations:

Downloads: (external link)
https://journals.sagepub.com/doi/10.1177/0272989X231165958 (text/html)

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:sae:medema:v:43:y:2023:i:4:p:508-520

DOI: 10.1177/0272989X231165958

Access Statistics for this article

More articles in Medical Decision Making
Bibliographic data for series maintained by SAGE Publications ().