Psychometric performance of proxy-reported EQ-5D youth version 5-level (EQ-5D-Y-5L) in comparison with three-level (EQ-5D-Y-3L) in children and adolescents with scoliosis

Jiaer Lin, Carlos King Ho Wong (), Jason Pui Yin Cheung (), Prudence Wing Hang Cheung and Nan Luo
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Jiaer Lin: The Chinese University of Hong Kong
Carlos King Ho Wong: The University of Hong Kong
Jason Pui Yin Cheung: The University of Hong Kong
Prudence Wing Hang Cheung: The University of Hong Kong
Nan Luo: National University of Singapore

The European Journal of Health Economics, 2022, vol. 23, issue 8, No 11, 1383-1395

Abstract: Abstract Objectives To assess the psychometric performance of proxy-reported EQ-5D-Y-5L (Y-5L) in comparisons with EQ-5D-Y-3L (Y-3L) administered by caregivers of patients with juvenile (JIS) or adolescent idiopathic scoliosis (AIS). Methods A consecutive sample of caregivers of JIS or AIS patients were recruited. Redistribution property, ceiling effects, and discriminative power were examined. Known-group validity was determined by examining their ability to detect differences across clinical known groups. Test–retest reliability was assessed using intraclass correlation coefficient (ICC) for EQ-VAS score and Gwet’s agreement coefficient (GAC) and percentage agreement (PA) for dimension responses. Furthermore, subgroups were analyzed for comparing test–retest reliability. Results A total of 130 caregivers were involved in the study. Consistencies between proxy-reported Y-3L and Y-5L were very high for all dimensions (93.8–99.2%). The ceiling effect in the Y-5L was slightly reduced in four dimensions (AR: 0.8–2.3%) whereas increased in “Having pain/discomfort”. Greater informativity was found in the Y-5L than the Y-3L. In known-group comparisons of curvature magnitude, curvature type, and treatment modality, Y-5L and Y-3L dimension scales showed hypothesized results. For example, more full-health responses were found in the mild Cobb angle group (Y-5L: 63.1%; Y-3L: 62.2%) than the severe Cobb angle group (Y-5L: 55.6%, Y-3L: 55.6%). EQ-VAS score exhibited low test–retest reliability (ICC: 0.41), whereas dimension scales of both instruments showed satisfactory test–retest reliability (GAC ≥ 0.7 and PA ≥ 70% for all). In most known groups, hard-to-observe dimensions were more reliable for proxy-reported Y-5L than Y-3L. Conclusion Both the proxy-reported Y-5L and Y-3L are valid and reliable instruments for assessing the HRQoL of JIS or AIS patients.

Keywords: Proxy; EQ-5D-Y-3L; EQ-5D-Y-5L; Psychometric performance; Adolescent idiopathic scoliosis (search for similar items in EconPapers)
JEL-codes: I31 (search for similar items in EconPapers)
Date: 2022
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Citations: View citations in EconPapers (1)

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DOI: 10.1007/s10198-022-01435-z

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