The Value of Caregiver Time: Costs of Support and Care for Individuals Living with Austism Spectrum Disorder

Carolyn Dudley and Jennifer Zwicker
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Carolyn Dudley: The School of Public Policy, University of Calgary
Jennifer Zwicker: The School of Public Policy, University of Calgary

SPP Communique, 2016, vol. 8, issue 3

Abstract: An estimated 1 in 86 children are diagnosed with Autism Spectrum Disorder (ASD)making it the most commonly diagnosed childhood neurological condition in Canada.The true costs of lifelong support for people living with ASD are often underestimated and fail to acknowledge the value of caregiver time over the lifespan. Significant gaps in publically provided support systems leave the cost burden to be picked up by families. Relying on continued family supports where community services are fragmented or unavailable is not a sustainable approach.

Date: 2016
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