Lethal privacy: Quantifying life years lost if the right to informational self-determination guides genetic screening for Lynch syndrome

Fabia Gansen, Franziska Severin, Sebastian Schleidgen, Georg Marckmann and Wolf Rogowski

Health Policy, 2019, vol. 123, issue 10, 1004-1010

Abstract: Genetic relatives of hereditary colorectal cancer patients with Lynch syndrome (LS) are at risk of cancer. Testing both colorectal cancer patients and relatives of mutation carriers for LS allows targeted prevention. However, this could mean disclosing sensitive health data to family members. In light of potential trade-offs between cost-effectiveness and patient privacy, this study investigates the implications of increasing test uptake in Germany.

Keywords: Lynch syndrome; Screening; Cost-effectiveness; Informational self-determination; Germany (search for similar items in EconPapers)
Date: 2019
References: View complete reference list from CitEc
Citations:

Downloads: (external link)
http://www.sciencedirect.com/science/article/pii/S0168851019302052
Full text for ScienceDirect subscribers only

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:eee:hepoli:v:123:y:2019:i:10:p:1004-1010

DOI: 10.1016/j.healthpol.2019.08.015

Access Statistics for this article

Health Policy is currently edited by Katrien Kesteloot, Mia Defever and Irina Cleemput

More articles in Health Policy from Elsevier
Bibliographic data for series maintained by Catherine Liu () and ().