Children's self reported discomforts as participants in clinical research

Mira S. Staphorst, Joke A.M. Hunfeld, Suzanne van de Vathorst, Jan Passchier and Johannes B. van Goudoever

Social Science & Medicine, 2015, vol. 142, issue C, 154-162

Abstract: There is little empirical evidence on children's subjective experiences of discomfort during clinical research procedures. Therefore, Institutional Review Boards have limited empirical information to guide their decision-making on discomforts for children in clinical research. To get more insight into what children's discomforts are during clinical research procedures, we interviewed a group of children on this topic and also asked for suggestions to reduce possible discomforts.

Keywords: Adolescent; Child; Discomfort; Ethics; Experience; Clinical research procedures; Self-report (search for similar items in EconPapers)
Date: 2015
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DOI: 10.1016/j.socscimed.2015.08.019

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