Wider institutional research cultures and their influence on patient and public involvement and engagement in health research – An institutional ethnography

Anne Wettergren Karlsson, Anne Kragh-Sørensen, Kirsten Børgesen, Karsten Erik Behrens, Torben Andersen, Karen Margrethe Maglekær, Mette Juel Rothmann, Marjolijn Ketelaar, Esben Nedenskov Petersen and Astrid Janssens

Social Science & Medicine, 2024, vol. 347, issue C

Abstract: Focus on patient and public involvement and engagement (PPIE) is increasing in health policy and research governance. PPIE is considered by some to be a democratic right, and by others to be a way to improve health care and research outcomes and implementation. Most recently, policy makers, funders and (clinical) research institutions are making PPIE a strategic requirement for health research urging researchers to invite patients and relatives into their research activities.

Date: 2024
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DOI: 10.1016/j.socscimed.2024.116773

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