A Multinational Longitudinal Study Incorporating Intensive Methods to Examine Caregiver Experiences in the Context of Chronic Health Conditions: Protocol of the ENTWINE-iCohort

Val Morrison, Mikołaj Zarzycki, Noa Vilchinsky, Robbert Sanderman, Giovanni Lamura, Oliver Fisher, Giulia Ferraris, Saif Elayan, Erik Buskens, Eva Bei, Anne Looijmans, Viola Angelini and Mariët Hagedoorn
Additional contact information
Val Morrison: School of Human and Behavioural Sciences, Bangor University, Bangor LL57 2AS, UK
Mikołaj Zarzycki: School of Human and Behavioural Sciences, Bangor University, Bangor LL57 2AS, UK
Noa Vilchinsky: Department of Psychology, Faculty of Social Sciences, Bar-Ilan Univeristy, Ramat Gan 5290002, Israel
Robbert Sanderman: Department of Health Psychology, University Medical Center Groningen, University of Groningen, 9713 GZ Groningen, The Netherlands
Giovanni Lamura: Centre for Socio-Economic Research on Ageing, IRCCS INRCA-National Institute of Health and Science on Ageing, 60124 Ancona, Italy
Oliver Fisher: Centre for Socio-Economic Research on Ageing, IRCCS INRCA-National Institute of Health and Science on Ageing, 60124 Ancona, Italy
Giulia Ferraris: Department of Health Psychology, University Medical Center Groningen, University of Groningen, 9713 GZ Groningen, The Netherlands
Saif Elayan: Department of Economics, Econometrics and Finance, Faculty of Economics and Business, University of Groningen, Nettelbosje 2, 9747 AE Groningen, The Netherlands
Erik Buskens: Faculty of Medical Sciences, Antonius Deusinglaan 1, 9713 AV Groningen, The Netherlands
Eva Bei: Department of Psychology, Faculty of Social Sciences, Bar-Ilan Univeristy, Ramat Gan 5290002, Israel
Anne Looijmans: Department of Health Psychology, University Medical Center Groningen, University of Groningen, 9713 GZ Groningen, The Netherlands
Mariët Hagedoorn: Department of Health Psychology, University Medical Center Groningen, University of Groningen, 9713 GZ Groningen, The Netherlands

IJERPH, 2022, vol. 19, issue 2, 1-17

Abstract: Informal caregivers are those who provide unpaid care to a relative or friend with a chronic illness, disability or other long-lasting health or care need. Providing informal care in the context of chronic health conditions presents a significant global challenge. Examination of the determinants of informal caregivers’ behaviour, especially in terms of motivations and willingness to provide/receive care, is crucial to understanding the nature of caregiver and care recipient experiences. A large group of international researchers have co-operated to execute the ENTWINE iCohort-a multinational, transdisciplinary, longitudinal study incorporating intensive methods to examine caregiver experiences in the context of chronic health conditions. The aim of ENTWINE-iCohort is to investigate the broad spectrum of factors, i.e., cultural, personal, geographical, relational, psychological, and economic that may affect motivations, willingness to provide or receive care, among diverse groups of informal caregivers and their care recipients, in different countries that have different care systems. Study questionnaires will be disseminated on-line in nine countries: Germany, Greece, Ireland, Italy, Israel, the Netherlands, Poland, Sweden, and the UK. Cross-sectional and longitudinal multivariate analysis, including intensive longitudinal and dyadic data analysis will be applied to examine the relative contribution of the above factors to caregiver or care recipient wellbeing.

Keywords: informal caregiving; multinational; caregiver motivations; wellbeing (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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