Strengthening Parental Capabilities: Examining the Role of Interdisciplinary Support in Enhancing Parental Well-Being and Capabilities in Developmental Disability Care

Lumka Magidigidi-Mathiso (), Gérard Charl Filies and Jose Frantz
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Lumka Magidigidi-Mathiso: Centre for Interdisciplinary Studies of Children, Families and Society, Faculty of Community and Health Sciences, University of the Western Cape, Bellville 7535, South Africa
Gérard Charl Filies: Interprofessional Education Unit, Faculty of Community and Health Sciences, University of the Western Cape, Bellville 7535, South Africa
Jose Frantz: Department of Physiotherapy, Faculty of Community and Health Sciences, University of the Western Cape, Bellville 7535, South Africa

Social Sciences, 2025, vol. 14, issue 6, 1-15

Abstract: Purpose: The purpose of this study was to explore parents’ lived experiences raising children with developmental disabilities (DDs), examine their emotional and physical challenges, and investigate the role of interdisciplinary support in strengthening parental capabilities. Materials and Methods: A qualitative descriptive study was conducted using two focus groups ( n = 23 parents). Data were analyzed using Braun and Clarke’s six-step thematic analysis. Results: Five major themes emerged: (1) acceptance and emotional journey, (2) healthcare system navigation challenges, (3) educational and community integration barriers, (4) the development of coping strategies and support systems, and (5) resilience and positive growth. Parents reported significant emotional challenges but demonstrated remarkable resilience when supported by comprehensive care systems. Conclusions: The findings highlight the need for integrated support systems that address both the practical and emotional needs of parents raising children with DDs. Healthcare providers and community stakeholders must work collaboratively to create more inclusive and supportive environments for these families.

Keywords: parental capabilities; developmental disabilities; interdisciplinary support; parental well-being; human capability approach (search for similar items in EconPapers)
JEL-codes: A B N P Y80 Z00 (search for similar items in EconPapers)
Date: 2025
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