Comment on Grace et al. (2024). Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and Multiple Disabilities and Decolonising Research. Social Sciences 13: 37

Nicola C. Grove (), Karen T. Bunning (), Susan Buell, Fiona M. Poland, Gosia M. Kwiatkowska, Darren D. Chadwick and Juliet L. Goldbart
Additional contact information
Nicola C. Grove: Rix Inclusive Research, Docklands Campus, University of East London, London E16 2RD, UK
Karen T. Bunning: Norwich Research Park, University of East Anglia, Norwich NR4 7TJ, UK
Susan Buell: School of Health Sciences, University of Dundee, Dundee DD1 4HN, UK
Fiona M. Poland: Norwich Research Park, University of East Anglia, Norwich NR4 7TJ, UK
Gosia M. Kwiatkowska: Rix Inclusive Research, Docklands Campus, University of East London, London E16 2RD, UK
Darren D. Chadwick: School of Psychology, Liverpool John Moores University, Liverpool L3 3AF, UK
Juliet L. Goldbart: School of Psychology, Manchester Metropolitan University, Manchester M15 6BX, UK

Social Sciences, 2025, vol. 14, issue 6, 1-15

Abstract: This article is a response to a paper, published last year in this journal, by Grace, Nind, de Haas and Hope. The authors sought to “question how we create knowledge and challenge underlying assumptions about valid forms of knowing” (p. 3). Their focus is on inclusive research with people who have profound intellectual and multiple disabilities (PIMDs). They describe their approach as “being with”, aligned with the experience of meaning, as opposed to doing research with people, which they locate in knowledge extraction. Recognising the authors’ commitment to foregrounding the personhood of people with PIMDs, a critique is developed in order to open a debate around issues of ethical research practices, decolonisation and conceptualisation of ‘deep knowledge’.

Keywords: inclusive research; participatory research; profound intellectual and multiple disabilities; decolonising research; ethics; vulnerability; epistemology; positionality; reflexivity (search for similar items in EconPapers)
JEL-codes: A B N P Y80 Z00 (search for similar items in EconPapers)
Date: 2025
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