La voix des patients: Le cri de la vie dans le silence de la raison

Ainur Camber-Rougé ()
Additional contact information
Ainur Camber-Rougé: IRG - Institut de Recherche en Gestion - UPEC UP12 - Université Paris-Est Créteil Val-de-Marne - Paris 12 - Université Gustave Eiffel

Post-Print from HAL

Abstract: This presentation examines how the patient's voice is defined, constructed, and mobilised within healthcare organisations. Drawing on an integrative literature review, Grounded Theory, and autoethnography, the study shows that although the patient's voice is increasingly highlighted in institutional discourse, it is largely reshaped to fit managerial and organisational logics. The analysis of over 850 references identifies 21 distinct meanings of the concept, revealing a strong tendency to convert lived experience into managerial data—indicators, scores, and quality metrics—at the expense of its situated and subjective dimensions. Building on the theoretical contributions of Bachelard, Weber, and Devereux, the presentation highlights the tension between the recognition of experiential knowledge and patient–professional partnership initiatives on the one hand, and the limited organisational impact of these perspectives on the other. The research thus questions the conditions under which the patient's voice can move beyond an instrumentalised informational role and become a real driver of decision-making and organisational transformation in healthcare settings.

Keywords: Experiential knowledge; Hospital governance; Health care management; Autoethnography; Patient voice; Savoirs expérientiels; Gouvernance hospitalière; Management des organisations de santé; Auto-ethnographie; Voix du patient (search for similar items in EconPapers)
Date: 2025-11-20
Note: View the original document on HAL open archive server: https://hal.science/hal-05378070v1
References: Add references at CitEc
Citations:

Published in Le dépassement des frontières dans les organisations de santé : enjeux, défis et perspectives, ARAMOS, Nov 2025, Lyon, France

Downloads: (external link)
https://hal.science/hal-05378070v1/document (application/pdf)

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:hal:journl:hal-05378070

Access Statistics for this paper

More papers in Post-Print from HAL
Bibliographic data for series maintained by CCSD ().