Facets of Parenting a Child with Hypoplastic Left Heart Syndrome

Gwen R. Rempel, Laura G. Rogers, Vinitha Ravindran and Joyce Magill-Evans

Nursing Research and Practice, 2012, vol. 2012, 1-9

Abstract:

The purpose of the study was to conceptualize the needs of parents of young children with hypoplastic left heart syndrome (HLHS) to provide a theoretical framework to inform the development of future parent interventions. Participants were parents and grandparents ( ) of 15 young children who had undergone the Sano surgical approach for HLHS. Analysis of recorded and transcribed single interviews with each participant was done as directed by interpretive description methodology. A model of five facets of parenting was conceptualized. These included survival parenting, “hands-off” parenting, expert parenting, uncertain parenting, and supported parenting. The facets of parenting delineated through this study provide a theoretical framework that can be used to guide the development and evaluation of interventions for parents of children with complex congenital heart disease and potentially other life-threatening conditions. Each facet constitutes a critical component for educational or psychosocial intervention for parents.

Date: 2012
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Persistent link: https://EconPapers.repec.org/RePEc:hin:jnlnrp:714178

DOI: 10.1155/2012/714178

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